My wife has a condition called Progressive Supranuclear Palsy (PSP), a degenerative condition caused by a build-up of Tau proteins in the brain. It is very rare (5 in 100000), very difficult to diagnose, untreatable and incurable. It is typified by muscle stiffness in the limbs, throat and eyes;
a tendency to fall very easily and without warning; inability to speak clearly and the eyes cannot scan a page. This information was given very clearly to the assessor when she visited. When I received the copy of their assessment report, it showed the following:-
Relevant Medical History - High Blood Pressure (untrue)
Osteoporosis
Provide Additional detail below -
Progressive supranuclear palsy.
As carers arrive they are asked if they are aware of my wife's principal condition, the reply is always to ignore PSP and have to search for it on their handheld devices.
The organisation refuses to amend the report to tell the truth, putting cares and wife in jeopardy.
Latest Reviews for Human Support Group - York
04 January 2021
My wife has a condition called Progressive Supranuclear Palsy (PSP), a degenerative condition caused by a build-up of Tau proteins in the brain. It is very rare (5 in 100000), very difficult to diagnose, untreatable and incurable. It is typified by muscle stiffness in the limbs, throat and eyes;
a tendency to fall very easily and without warning; inability to speak clearly and the eyes cannot scan a page. This information was given very clearly to the assessor when she visited. When I received the copy of their assessment report, it showed the following:-
Relevant Medical History - High Blood Pressure (untrue)
Osteoporosis
Provide Additional detail below -
Progressive supranuclear palsy.
As carers arrive they are asked if they are aware of my wife's principal condition, the reply is always to ignore PSP and have to search for it on their handheld devices.
The organisation refuses to amend the report to tell the truth, putting cares and wife in jeopardy.