People with only 12 months to live to get fast-tracked access to benefits

Last Updated: 09 Jul 2021 @ 10:39 AM
Article By: Jill Rennie

Marie Curie and the Motor Neurone Disease Association (MND) have welcomed the government’s decision to give people in the final year of their lives fast-tracked access to benefits under changes to the rules for terminally ill claimants.

Changes announced by the Department for Work and Pensions (DWP) confirmed people living their final year of their life will receive vital financial support quickly and at the highest rate through revised Special Rules for Terminal Illness, previously these rules were only in place for those with six months or less to live.

Minister for Disabled People Justin Tomlinson said: “Being diagnosed with a terminal illness is devastating and this change will increase much needed support for people who are nearing the end of their lives.

“The new 12-month approach will ensure people get the financial help they need as quickly as possible in the most challenging of times. We have carefully considered the best approach and I am grateful to everyone who has contributed to our work in reaching this outcome.”

Ministers plan to implement the 12-month end-of-life approach across five DWP benefits, beginning with Universal Credit and Employment Support Allowance next year and Attendance Allowance, Disability Living Allowance and Personal Independence Payment when parliamentary time allows.

It follows a DWP evaluation which heard the views of people nearing the end of their lives, their families and friends, the organisations supporting them and the clinicians involved in their care.

'This is a victory for the hundreds of campaigners across the country'

Matthew Reed, chief executive Marie Curie, said: “Following years of campaigning for change, Marie Curie welcome the news today which is significant step forward and a tribute to all those who bravely shared their experiences of the benefits system. This will help ensure more dying people can concentrate on making the most of the limited time they have left, rather than worrying about their finances. Marie Curie believes that everyone has the right to the best end of life care and support.

“There is more to be done, but this is important progress and we look forward to working with the UK Government to bring in this change as quickly as possible.

“Marie Curie will continue to play our part in making the case for people living with terminal illness to receive the financial support they need at the end of life and ensuring terminally ill people and their health professionals know what they are entitled to.”

The MND Association said they were "pleased the government has listened to the voices of terminally ill people and announced it will scrap the six-month rule but want the recommendations to be "implemented quickly."

Sally Light, chief executive of MND Association said: “This is a victory for the hundreds of campaigners across the country who have worked tirelessly alongside the MND Association urging the government to change the rules.

“Now the recommendations must be implemented quickly, to ensure no more people already facing the most difficult time of their life have to wait to claim the support they not only desperately need but are entitled to.”

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